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    Archived pages: 646 . Archive date: 2014-10.

  • Title: IPPOSI - Irish Platform for Patients' Organisations, Science & Industry
    Descriptive info: .. Home.. About IPPOSI.. Why Join IPPOSI?.. Current Members.. Information Centre.. Rare Diseases.. Clinical Research.. Patient Registries.. Access to Medicines.. Stakeholder Forum - BBMRI.. IPPOSI Submissions.. Patient Video Diaries.. EUPATI.. Compliance and Adherence.. Annual Reports.. Events.. Event Articles.. Event Photos.. News.. Newsletter.. Updates for Sharing.. Links.. Contact Us.. IPPOSI Staff.. div >.. uk-panel'}" data-uk-grid-margin>.. Connected Health.. EUPATI videos.. Health Hack.. IPPOSI & EUPATI.. Latest News.. Connected Health Conference update.. EUPATI / AGM videos & presentations.. Palliative care for children booklet.. Health Hack entry videos.. Minister for Health's briefing papers.. Thank you!.. Medicines Development.. The HRB presentation on European Data Protection Regulation is available.. here.. Connect.. Connected Health - November 24,.. latest  ...   2.. 3.. 4.. 5.. 6.. 7.. 8.. 9.. 10.. 11.. 12.. 13.. 14.. 15.. 16.. 17.. 18.. 19.. 20.. 21.. 22.. 23.. 24.. 25.. 26.. 27.. 28.. 29.. 30.. 31.. Clinical Trials.. http://www.. clinicaltrials.. ie.. Latest Tweets.. @DmitriWall.. thanks you are great in this.. @avrilbdaly.. too ;).. by.. IPPOSI.. scroll to the end! (It's v good btw).. http://t.. co/gGFDOVlNc8.. V few places left for.. @IPPOSI.. @insight_centre.. Connected Health event in Nov, register here, standby list opening:.. co/aUEH9CYuvz.. Irish Platform for Patients’ Organisations, Science Industry.. Camden Business Centre, 12 Camden Row, Dublin 8.. www.. ipposi.. ie -.. info@ipposi.. T: 01 4790552 - IPPOSI.. Registered company number 408258 CHY number 17079 © 2014..

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  • Title: IPPOSI - About IPPOSI
    Descriptive info: Welcome to IPPOSI.. Written on.. 26 May 2006.. A unique partnership of Patient Groups/Charities, Science and Industry on the island of Ireland.. As a patient led partnership, the platform provides a structured way of facilitating interaction between the three key membership groups (patients' organisations, scientists and industry (and where possible with State Agencies) on policy, legislation and regulation around the development of new medicines, products, devices and diagnostics for unmet medical needs in Ireland.. Our Vision:.. The IPPOSI vision is one where state of the art innovations in health care are available at the earliest stages to patients in Ireland.. We do this through:.. • Expertise.. • Dialoguing.. • Consensus building.. • Networking.. IPPOSI is not a lobbying organisation but via expertise, dialogue, consensus and networking we work to smooth the path in Ireland for new medicines and therapies to move from basic science in laboratories to the patients who need them.. IPPOSI is part funded by the Health Research Board, Ireland.. Background.. IPPOSI - The Irish Platform for Patients' Organisations, Science and Industry (IPPOSI)  ...   Achieving a Step Change in Health Research in Ireland".. From establishment in 2001 to 2007, five key meetings were held on topics such as Orphan Medicinal Products Regulation of the EU, the Commercialisation of Health Research, EU Clinical Trials Directive and Medicines for Rare Diseases.. Since 2008 the organisation's activities have greatly increased.. IPPOSI now submits to national and international public consultations, a number of Think Tanks have been created, 2-3 large conferences are held annually which are complemented by Lunch Time Talks with leading experts on current and pressing issues of concern to our member groups (patients' organisations, science, industry).. Monthly Newsletters, EAlerts and tailored daily information material are now shared with IPPOSI members on relevant matters of national and international significance.. Reports and briefing papers have also been drawn up on clinical research infrastructure in Ireland, Patient Registries, Access to Medicines and New Medical Technologies and Rare Diseases.. Increasingly also IPPOSI is called upon to advise, facilitate interaction and information sharing between Semi State, State, NGO and Industry Bodies at national and international level..

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  • Title: IPPOSI - Why Join IPPOSI?
    Descriptive info: Why Join IPPOSI?.. 11 June 2009.. Close links between Patients, Clinicians, Academic Scientists, Industry, Regulators, Policy Makers - key influencers in an Irish context.. IPPOSI is recognised by the Department of Health as being an organisation contributing towards the overall development of Health Research Policy in Ireland.. The Platform provides a  ...   with industry and will therefore be of considerable benefit to medical researchers.. Close links with patient groups will give industry partners a greater awareness of patient needs and concerns and facilitate access to volunteers for clinical trials.. Conversely, patient groups will gain a greater understanding of industry positions and processes.. Next..

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  • Title: IPPOSI - Current Members
    Descriptive info: Current Members of IPPOSI.. IPPOSI invites membership applications from patients' organisations, science/clinicians, pharmaceutical industry and other interested stakeholders in the health field.. If you would like to become a Member of IPPOSI, please contact.. This email address is being protected from spambots.. You need JavaScript enabled to view it.. ">.. for further details and an application form.. Patient Organisations ( other charities):.. Ankylosing Spondylitis Association of Ireland (ASAI).. Arthritis Ireland.. Asthma Society of Ireland.. Bee for Battens, The Saoirse Foundation.. Alpha One.. Brainwave The Irish Epilepsy Association.. Chronic Pain Association.. Cystinosis Foundation Ireland.. Cystic Fibrosis.. Debra Ireland.. Dercum Disease.. Diabetes Federation of Ireland.. Duchenne Ireland.. Ehlers Danlos Syndrome.. European Assoc.. of Patients Orgs of Sarcoidosis (EPOS).. Fabry Ireland.. Federation of European Scleroderma Association.. Fighting Blindness.. Friedreich's Ataxia Society Ireland.. Genetic Rare Disorders Organisation (GRDO).. Huntington's Disease Association of Ireland.. Ileostomy Internal Pouch Support Group.. Irish Cancer Society.. Irish Fragile X Society.. Irish Heart Foundation.. Irish Hospice Foundation.. Irish Kidney Association.. Irish Lupus Society.. Irish ME/CFS Association.. Irish Motor Neurone Disease Association (IMNDA).. Irish Osteoporosis Society.. Irish Patients Association.. Irish Raynaud's Scleroderma Society.. Irish Sarcoidosis Support Network (ISARC).. Irish Society for Mucopolysaccharide Diseases.. Meningitis  ...   Hospital.. Biobank Ireland Trust.. Childrens University Hospitals.. Cork University - Oncology Clinical Trials.. CSTAR.. DCU - National Institute for Cellular Biotechnology Galway University Hospital.. Dublin Dental School Hospital.. Irish Medicines Board.. Mater University Hospital.. Midland Regional Hospital.. Molecular Medicine Ireland.. NCRC - National Cancer Research Centre.. OLCHC - Our Ladys Childrens Hospital Crumlin.. Perinatal Ireland.. RCSI - Royal College of Surgeons Ireland.. Royal Victoria Eye Ear Hospital - Research Foundation.. Waterford Institute of Technology School of Health Sciences.. Science Foundation Ireland.. Sligo General Hospital.. St.. James Hospital.. James - National Centre for Pharmacoeconomics.. Vincent's University Hospital.. TCD.. The Belfast Trust - Regional Immunology Service.. Tril - Technology Research for Independent Living.. Trinity Centre for Health Science.. UCC.. UCD.. UCD Research.. UCD School of Law.. UCD School of Medicine and Medical Science.. Industry:.. Abbott Laboratories.. Alexion.. Bayer.. BioMarin.. Celgene.. Genzyme.. GlaxoSmithKline.. Janssen-Cilag.. MSD.. Novartis Ireland Limited.. Pfizer.. Roche.. Sanofi.. Shire Pharmaceuticals Ireland.. Other:.. The Board of IPPOSI represents the interest of the membership as a whole.. As well as Board Members, IPPOSI also has members from the following organisations/institutions:.. Eighth Day.. Enterprise Ireland.. HIQA.. HRB.. HSC NI.. HSE.. IDA.. IMSTA.. ISQSH.. State Claims Agency.. Prev..

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  • Title: IPPOSI - Information Centre
    Original link path: /index.php/information-centre
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  • Title: IPPOSI - Rare Diseases
    Descriptive info: Share a Dream application form.. 24 September 2014.. To download the application form, click.. Rare Disease Plan launched!.. 03 July 2014.. Huge congratulations to everyone invovled in drafting the National Rare Disease Plan for Ireland 2014-2018.. We all enjoyed a fantastic launch today in the RCPI, a huge thanks to the Rare Disease Taskforce, and to Minister Reilly and Dr Ambrose McLoughlin and Dr John Devlin.. You can download the Plan.. Some press covereage.. EURORDIS TV - clip from Rare Disease Day, Belfast.. 24 April 2014.. Minister Reilly references the scoping of a national office for rare diseases.. 08 April 2014.. Speaking at the Joint Oireachtas Committee on Health and Children, Minister James Reilly referenced the work being done by the HSE and the Department of Health in scoping the establishment of a national office for rare diseases in Ireland.. You can read what he said.. - the last five paragraphs of his speech.. Rare Disease Meeting Mansion House, Feb 26.. 19 March 2014.. The Irish Medical Times published.. this piece.. about the GRDO meeting in the Mansion  ...   Lorraine Dempsey (Special Needs Parents Association) and Declan McPhillips (Rett Syndrome Association of Ireland) updated members of the Oireachtas on key issues.. The delegation presented for almost two hours and you can see a video of this session by clicking.. (Please note that clicking this link will launch your media player and that the session does not start until two minutes into the video).. Rare Disease Day update.. Rare Disease Day in Belfast was a great success, and you can see pictures from the event here.. The Minister Alex White (pictured above) addressed the audience and spoke about the work being done by officials on both sides of the border.. The Minister's speech is available on the IPPOSI website.. Meanwhile a Rare Diseases Symposium will also be held by QUAMS - Queen's University Academic Medicines Society on March 27.. Go.. for more details.. Irish Medical News, March 18 2014.. More Articles.. Pictures from Rare Disease Day.. Rare Diseases Without Borders 2013 Report.. Joint North South Rare Disease Day Conference Belfast Feb 28.. Rare Disease Day - Feb 28th..

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  • Title: IPPOSI - Clinical Research
    Descriptive info: Internation Clinical Trials Day 2014.. 22 May 2014.. ICORG produced this clip with Aine Lawlor to mark International Clinical Trials Day on May 20th.. On the same day, the Metro Herald published this picture to help promote.. :.. Irish Times covers clinicaltrials.. ie launch.. 13 May 2014.. IPPOSI and the NCRC were delighted to at last launch.. for children.. The campaign sees the publication of a range of age-appropriate materials aimed at children who may be taking part in clinical trials.. To assist launching the campaign, Cillian Wade (5), and his family spoke to the Irish Times Health + Family supplement, and you can read their story.. The launch event, which was held in the seminar room of the NCRC was very well attended, and included input from Professor Carlos Blanco, Director of Research at the NCRC, Professor Colm O'Donnell, Director of Clinical Research at the NCRC, Eibhlin Mulroe of IPPOSI, and Dr Graham Love, the new CEO of the Health Research Board.. Prof Colm O'Donnell; Dr Ruth Barrington; Prof Carlos Blanci; Eibhlin Mulroe;.. Dr Graham Love; Dr Jacinta Kelly.. Cillian Wade (5) is one year into a 3.. 5 year clinical trial to treat leukaemia.. Public Attitudes Towards Clinical Research.. 07 May 2014.. The Report into the General Public's Attitudes Towards Clinical Research (2009) is available.. Members welcome to attend launch of clinical trials for children.. 30 April 2014.. IPPOSI members: if you would like to attend the launch (May 12th) of an information campaign to help inform children who may be taking part in clinical trials, email.. Full invitation available.. Clinical Trials Event 6th November downloads.. 07 November 2013.. Gloria Crispino presentation.. (pdf).. Siobhan Gaynor presentation.. Sinead Nally presentation.. IPPOSI Information Day: Clinical Research for Non-Clinical Researchers.. 26 October 2013.. Wednesday 6th November, 2013 at 10am.. (Registration Coffee at  ...   4071629.. Launch of IPPOSI Information Campaign - clinicaltrials.. 31 August 2012.. "So you've been asked to take part in a clincal trial?.. ".. On the 17th of September, 2012 at the Oak Room of the Mansion House, Dawson Street, Dublin 2.. Broadcaster Aine Lawlor accompanied by the CEO of the Health Research Board, Enda Connolly launched a new information campaign aimed at people who have been asked to participate in a clinical trial.. The information campaign includes a.. new leaflet.. and.. dedicated website.. , two sources of information which will provide patients with independent answers to many of the questions which they may have.. Speaking at the event.. Eibhlín Mulroe, CEO of IPPOSI.. said “.. From the research which IPPOSI has undertaken, we know that providing information increases the positive attitude which people have about participating in a clinical trial.. Increasing the willingness of people to participate in such research will inevitably increase Ireland’s capacity to conduct high-quality population health sciences research and thus help to develop new treatments and therapies for patients".. Continue Reading.. 26 July 2012.. An IPPOSI Information Day for Patients’ Organisations, Scientists and Industry members.. on Tuesday 28th August, 2012 at EU Parliament Office, Molesworth Street, Dublin 2.. M.. embers.. attended this IPPOSI Information Day which aimed to inform non-clinical researchers about clinical research issues.. Participants received an introduction to clinical research and an explanation of the terminology and conventions used.. Guest speaker Siobhan Gaynor guided those attending along the drug development pathway and through the clinical trial process.. Participants also explored the issue of consent and the international context of the Declaration of Helsinki and EU Directives.. DOWNLOAD PROGRAMME.. ICRIN - National Clinical Research Seminar.. Ministers Bruton and Sherlock launch Research Prioritisation Plan.. ICRIN Assessment of the Concept Paper submitted for public consultation.. Stem Cell Awareness Day..

    Original link path: /index.php/information-centre/clinical-research
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  • Title: IPPOSI - Patient Registries
    Descriptive info: Towards a National Strategy for Patients Registries Report.. 18 October 2011.. Download document.. Patient Registries Meeting 10 May 2011– Presentation by Fionnuala Donohue DoHC.. 27 May 2011.. Presentation from our recent MRCG/IPPOSI Event by Fionnuala Donohue DoHC:.. Towards a National Strategy for Patient Registries in Ireland.. available to.. Health Identifiers Bill published.. 29 January 2014.. The Minister for Health, James Reilly, has published the Health Identifiers Bill 2013.. Click.. for the Bill and.. for the Department of Health press release regarding same.. PATIENT REGISTRIES.. 22 March 2011.. TOWARDS A NATIONAL STRATEGY FOR PATIENT REGISTRIES IN IRELAND.. TUESDAY, 10.. th.. MAY, 2011,.. 1pm – 4pm.. (12.. 30pm lunch).. European Union House, Dawson St, Dublin 2.. REGISTRATION REQUIRED.. SEE EVENT  ...   for a copy of the IPPOSI submission.. The submission is based on input and discussion at the IPPOSI Patient Registries in Ireland - Where we go from here meeting.. Expert Group Draft Report on National Cancer Biobank.. 14 July 2008.. IPPOSI has responded to the 'Expert Group Draft Report on National Cancer Biobank'.. If you would like a copy please contact Karen Munnelly on.. Patient Registries in Ireland - Where we go from here? Clarion Hotel, IFSC, September 22nd 2008.. for a copy of the conference programme.. For a copy of the press release please.. for a copy of the outcome report.. An Update on Forthcoming Legislation.. Patient Registries Event - September 2008.. Useful Links on BBMRI and Biobanking..

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  • Title: IPPOSI - Access to Medicines
    Descriptive info: HTAi Pre-Conference Workshop 14 June 2014.. 26 June 2014.. Document available.. HTAi Non Medicines Patient Submission Template for consultation.. Submission template available.. NCPE training report presentations.. 05 February 2014.. The National Centre for Pharmacoeconomics (NCPE) facilitated a training day on HTAs for Patient Leaders on January 24, 2014.. The impetus for the event came from previous information days facilitated by IPPOSI and the NCPE in 2012/2013 where it became clear that more technical training was in demand by patients.. They are keen to learn how to maximise their engagement in the HTA process in the coming years.. The backdrop to the event is the ongoing consultation on HIQA’s Draft Guidelines for Stakeholder Engagement in the Health Technology Assessment process.. The learnings captured will be fed into that consultation.. In 2013 some patient groups got involved in discussions through IPPOSI with the NCPE on new products under review.. It has become clear that other products are coming down the tracks and patient organisations may need to engage and where possible provide data, evidence and consult on the product under review.. The issue for many patient groups is firstly to know when products are under review and secondly how to engage effectively with the NCPE on behalf of their patient group.. The NCPE accept that the Cystic Fibrosis story in 2013 demonstrated that patient groups can engage and provide useful data which can be utilised in the assessment.. The Panel.. Eibhlin Mulroe, IPPOSI,.. Prof.. Michael Barry, NCPE,.. Dr.. Roisin Adams, NCPE and.. Cathal Walsh, NCPE -.. presentation here.. In Summary.. Ms Mulroe.. opened the event by outlining the existing examples of patient engagement in the Irish policy landscape including the Steering Group for Rare Diseases.. She also outlined that there is a move both in the EU and the US to include the patient perspectives in HTAs and clinical trials;.. The European Academy for Therapeutic Innovation (EUPATI) are scheduled to run training courses patient leaders in 2014 with modules on HTAs.. The Roadmap to Patient-Focused Outcome Measurement in Clinical Trials (FDA).. Prof Barry.. took the group through the reimbursement process and the considerable increase year on year of assessments completed by the NCPE.. He described the difference between the Cost Effectiveness Analysis (CEA) and Cost Utility Analysis (CUA).. He presented an.. infogram.. of the decision making tree at the end of the HTA process and what happens if they say no.. He ended with the following thought which he believed could be attributed to all disease areas;.. the cancer profession and industry should take responsibility and not accept a substandard evidence base and an ethos of very small benefit at whatever cost: rather, we need delivery of fair prices and real value from new technologies.. Adams.. outlined some of the studies and HTAs she and her colleagues in the NCPE have completed.. They included population-based screening, vaccines and the impact of model choices.. She also discussed how patients currently influence decisions from patient groups’ representations through politicians to patient groups providing longitudinal data (efficacy) to the NCPE.. Adams was clear that the NCPE are open to discussing patient data collection with patient groups involved in registries.. The NCPE are open to advising on what is most useful to them but also best practice.. “We want to know how patients are getting on with their treatments – that’s the stuff we’d like to hear”.. Prof Walsh,.. a statistician, facilitated an interactive exercise where the group learned a little more about calculating the cost effectiveness of given new treatments with six very different scenarios.. In the hypothetical situations provided, the group had to identify what factual information should be ascertained, what statements or considerations relating to values may impact on decision consideration, and what aspects were irrelevant.. The exercise proved that like those in the NCPE our members understand the constraints of a finite budget and also understand how to distil information to what is relevant/fact and what  ...   can be taken into consideration by the NCPE in their assessments.. Data provided by patient organisations would be useful in this regard.. The societal costs of access to treatment including the patient’s ability or their carer’s ability to return to the workforce should be included in the cost effectiveness measures.. There is a need to consider the current process by which therapies for rare conditions are assessed.. The point was well made through one of the group exercises that the ‘lens’ we use to assess more common and life limiting disease does not always allow for a fair assessment of rare conditions.. IPPOSI will need to seek resources going forward to support patient groups’ endeavours to engage in the HTA process.. Health Technology International (HTAi) is developing a template for Patient “Input” to Medicines HTA and this may be worth adapting in an Irish context.. Measuring patient outcomes will become more important in the effort to reduce costs and time needed to develop trials.. The ISPOR -Patient Roundtable was informed by the FDA about a patient-outcome measurement which patient groups are encouraged to develop.. Some Irish patient groups present at the IPPOSI event would like to explore this further with the NCPE and seek advice on how to get started.. Many voiced the need for Early Dialogue and that companies/sponsors talk to NCPE/HTA authorities at phase 2 stage of Clinical Trials.. Get IPPOSI website into NCPE links section.. A beginner’s guide to words used in health technology assessment.. 05 July 2013.. This glossary explains words that are often used in health technology assessment(HTA) so that they can be more easily understood by anyone, especially patients and consumers.. It is hoped that it will inspire clearer communication and support patients and consumers taking part in HTA.. Words that are written in italics have their own separate entry.. Words that are listed as ‘see also’ give extra information on the topic.. Patients and organisations are encouraged to use this glossary and provide feedback about its usefulness(please see format back of glossary).. DOWNLOAD.. UPCOMING IPPOSI EVENT: An IPPOSI Information Day for Patients' Organisations, Scientists and Industry members.. 08 October 2013.. 10th October 2013 IPPOSI Information Day - Code of Marketing Practice for the Pharmaceutical Industry.. European Parliament Information Office, Molesworth Street, Dublin 2 Starting at 9.. 30am.. This event will introduce IPPOSI members to the Irish Pharmaceutical Healthcare Associations' Code of Marketing Practice.. The Code sets standards of conduct in the marketing of medicinal products to healthcare professionals.. The code also provides guidance to pharmaceutical companies on how to ensure their relationship with patient associations is positive, constructive, mutually beneficial and ethical.. Dr Rebecca Cramp, Scientific Regulatory Affairs Manager at the Irish Pharmaceutical Healthcare Association will facilitate this event and there will be time given to questions and discussion.. download pdf.. Asthma Society - The Case for Change.. Asthma Society Case for Change report available.. Outcome Report from IPPOSI Roundtable on Access to new Treatments and Therapies.. 11 October 2012.. DOWNLOAD THE REPORT.. In June 2012, IPPOSI (the Irish Platform for Patient Organisations, Science and Industry) facilitated a roundtable discussion with its members and invited guests, on the issue of Access to Innovation.. The Board of IPPOSI decided to call this meeting in response to reports of treatments which had been approved for reimbursement but were not reaching patients.. IPPOSI asked key patient organisations to outline the issues and clarify the situation for their patient members.. Key contributions were made by the Irish Cancer Society, MS Ireland and Fighting Blindness.. HTA Information Day.. 14 December 2011.. Download Report.. Access to Medicines and New Medical Technologies in the Era of Health Technology Assessments in Ireland - Outcome Report.. Access to Medicines and New Medical Technologies in the Era of Health Technology Assessments in Ireland, Croke Park Stadium, Monday 24th November 2008.. IPPOSI Information Day - Health Technology Assessments: The Theory and Practice.. Access to Medicines Event - November 2008..

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  • Title: IPPOSI - Stakeholder Forum - BBMRI
    Descriptive info: Stakeholders' Forum - BBMRI.. BBMRI Stakeholders' Forum.. 18 January 2010.. The BBMRI Stakeholders'.. Forum is assembling the input and requirements of the broad and heterogeneous stakeholder community of BBMRI, comprising patients, clinicians, funding organizations, associated project partners, industry, and users.. Patient Working Group.. Representative patient organisations are a crucible of observation and experience which justify their place as partners in research.. Indeed, an increasing number of patient organisations are working towards creating their own databank or biorepository..

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  • Title: IPPOSI - IPPOSI Submissions
    Descriptive info: IPPOSI Consensus Submissions.. IPPOSI Consensus Response to the Department of Health and Children Expert Group on Resource Allocation and Financing in the Health Sector (2009).. 17 July 2009.. To view the IPPOSI Consensus Response to the Department of Health and Children Expert Group on Resource Allocation and Financing in the Health Sector (2009), please.. UHI Submission Document.. 28 May 2014.. Once again, thanks to everyone who was involved in the consultation meeting in the Royal Irish Academy on May 20th, the submission document went to the Department of Health today (May 28th) and you can see the final document.. IPPOSI Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill (2008).. To view the IPPOSI Submission to the Department of Health and Children's Discussion Paper on the Proposed Health Information Bill (2008), please.. UHI Consultation - Presentation and thanks.. Following the completion of the UHI meeting in the Royal Irish Academy on Tuesday  ...   Health who set out the key points of the White Paper on UHI and took questions from IPPOSI members afterwards.. You can see Mr Lennon's presentation.. IPPOSI Response to Draft Report Recommendations for the establishment of a national cancer biobank (2008).. To view the IPPOSI Response to Draft Report "Recommendations for the establishment of a national cancer biobank" (2008), please contact.. IPPOSI Submission to the EU Public Consultation - Rare Diseases - Europe's Challenges (2008).. To view the IPPOSI Submission to the EU Public Consultation - "Rare Diseases - Europe's Challenges" (2008), please.. IPPOSI Consensus response to the EC Public Consultation Legal Proposal on Information to Patients (2008).. To view the IPPOSI Consensus response to the EC Public Consultation "Legal Proposal on Information to Patients" (2008), please.. European Commission Public Consultation on 'Legal Proposal on Information to Patients'.. IPPOSI Submission to the EU Public Consultation - Rare Diseases : Europe's Challenges.. Consultation Process: National Healthcare Charter - Paediatric Services..

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